Moving On with Hope

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Life has changed tremendously for me over the last year or so. My tethered spinal cord was released, my husband and I separated, another granddaughter was born, I made a decision to move to Indianapolis, my dad was diagnosed with cancer and so many other things have happened.

Life is not simple, this I know for sure. I’m incredibly grateful though for each day that God has given me to be here. The days that I have to be with my children and grandchildren are special. The days that I’ve been given to help lift up those who deal with chronic illnesses are rewarding. The days that I am still able to drive myself wherever I want to go are freeing.

It is no mistake that I am here or that things have changed. Somewhere in God’s master plan, I have a job to do and I intend to do it. Someone needs me.

The funny thing is that I’ve had one such conversation with a close friend that I’ve known for 26 years. A grandchild with syringomyelia and tethered cord. I could hear the love in my friend’s voice for her sweet granddaughter, Ella. Ella walks differently. Ella wouldn’t speak until she got a dog. Ella needs help that doctors aren’t giving her.

This new life isn’t easy, but nothing worth having ever is. I relish the idea of sharing with doctors and medical professionals in the Indianapolis area information on Chiari, syringomyelia, tethered cord, EDS and the other related illnesses. I want my children and grandchildren to have a different life from me. I want Ella to have a different life. I don’t want her grandmother to have to worry about how much pain she is enduring. I don’t want any child to think that pain is “normal” and everyone suffers like they do.

I also look forward to meeting Ella. Life is about hope….hope for a future, hope for a brighter tomorrow. May your life be blessed with much hope

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Mondays…..

So thankful for a wonderful weekend! Did a little shopping with my daughter and granddaughter (Heather and Autumn) on Friday. Saturday we drove down to James Madison University for a college lacrosse tournament. My son plays for club lacrosse for Lynchburg College in Lynchburg where he attends school. Sunday was church, laundry and grocery shopping. I am exhausted!!!

But……I’m waiting for deliveries, repairment, etc. on this Monday and I really want to sleep!!! Too much to do and too little energy, or spoons as those of us who are chronically ill say. I must find that story and post it. 🙂

Hope you had a good weekend, with beautiful weather, too.

 

About Me

Let me tell you a little bit about myself…..

I was born in rural Louisiana the second of four girls. As a second child, you are ignored but I was loud and talked and talked and talked, asking more questions than my mother knew how to answer. I did not allow my family to forget I existed!!

I have been married for almost 24 years to my New Yorker husband Paul. We make quite a combination!! I have 4 kids, Shannon aka Nicki is 29, Jim is 28, Heather is 26 and Terry will be 20 in a few weeks. Shannon is married to Joe and they have a beautiful daughter commonly called Princess Peanut Abbie by me, her Nonna. Princess Peanut Abbie will be 2 in May. Heather is married to Eli and they too have a beautiful daughter commonly called Princess Pickle Autumn. She is almost 7 months old. My family is my life!!!!!

I am a Christian. My paternal grandfather was a preacher and I loved him more than life itself. I’m so thankful that he read the Bible, prayed with me and taught me how to be a Christian. I will share my testimony with you another day, but I hope that it will touch your heart!!!

I am disabled. I was diagnosed with Chiari I Malformation (Chiari) in 2009. In 2010 I had brain decompression surgery and shortly thereafter I was diagnosed with Ehler’s Danlos Syndrome (EDS). I suffer from chronic pain, fatigue and inflammation and a roller coaster ride of symptoms, but God has been good to me!!!!

Please let me a note to let me know what you think of my blog. May God bless you today and always!!!

Donna