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Life has changed tremendously for me over the last year or so. My tethered spinal cord was released, my husband and I separated, another granddaughter was born, I made a decision to move to Indianapolis, my dad was diagnosed with cancer and so many other things have happened.

Life is not simple, this I know for sure. I’m incredibly grateful though for each day that God has given me to be here. The days that I have to be with my children and grandchildren are special. The days that I’ve been given to help lift up those who deal with chronic illnesses are rewarding. The days that I am still able to drive myself wherever I want to go are freeing.

It is no mistake that I am here or that things have changed. Somewhere in God’s master plan, I have a job to do and I intend to do it. Someone needs me.

The funny thing is that I’ve had one such conversation with a close friend that I’ve known for 26 years. A grandchild with syringomyelia and tethered cord. I could hear the love in my friend’s voice for her sweet granddaughter, Ella. Ella walks differently. Ella wouldn’t speak until she got a dog. Ella needs help that doctors aren’t giving her.

This new life isn’t easy, but nothing worth having ever is. I relish the idea of sharing with doctors and medical professionals in the Indianapolis area information on Chiari, syringomyelia, tethered cord, EDS and the other related illnesses. I want my children and grandchildren to have a different life from me. I want Ella to have a different life. I don’t want her grandmother to have to worry about how much pain she is enduring. I don’t want any child to think that pain is “normal” and everyone suffers like they do.

I also look forward to meeting Ella. Life is about hope….hope for a future, hope for a brighter tomorrow. May your life be blessed with much hope